The YODA (Yale Open Data Access) Project is a Yale University project to promote open data in clinical research.
The YODA Project has served as a trusted intermediary in a variety of collaborative efforts to make scientific data more broadly available to researchers. It is a response to expanding demands for health information.[1]
The YODA Project is currently partnering with Johnson & Johnson..[2][3][4] SI-BONE is also a partner.[5] Inquiries for data availability for unlisted trials from these data holders can also be submitted.[6]
This project is being examined as a pilot for a new way of sharing information.[7][8]
See also
editReferences
edit- ^ Taichman, Darren B.; Backus, Joyce; Baethge, Christopher; Bauchner, Howard; de Leeuw, Peter W.; Drazen, Jeffrey M.; Fletcher, John; Frizelle, Frank A.; Groves, Trish; Haileamlak, Abraham; James, Astrid; Laine, Christine; Peiperl, Larry; Pinborg, Anja; Sahni, Peush; Wu, Sinan (28 January 2016). "Sharing Clinical Trial Data — A Proposal from the International Committee of Medical Journal Editors". New England Journal of Medicine. 374 (4): 384–386. doi:10.1056/NEJMe1515172. ISSN 0028-4793. PMC 4720169. PMID 26786954.
- ^ Herper, Matthew (30 January 2014). "In Stunning Win For Open Science, Johnson & Johnson Decides To Release Its Clinical Trial Data To Researchers - Forbes". forbes.com. Retrieved 12 May 2015.
- ^ Armstrong, Drew (31 January 2014). "J&J Sets Drug Data Free in 'YODA' Collaboration With Yale". bloomberg.com. Retrieved 12 May 2015.
- ^ "Johnson & Johnson Announces Clinical Trial Data Sharing Agreement with Yale School of Medicine | Johnson & Johnson". www.jnj.com. Retrieved 22 August 2016.
- ^ Hofheinz, Elizabeth. "Yale, SI-BONE Commence Data Transparency Project | Orthopedics This Week". ryortho.com. Retrieved 22 August 2016.
- ^ "BioLINCC: Yale University Open Data Access Project (YODA)". National Heart, Lung, and Blood Institute. Retrieved 17 August 2016.
This article incorporates text from this source, which is in the public domain.
- ^ Shaikh, Abdul; Mutscher, Gus (4 August 2014). "Innovators in Health Data Series: The Yale Open Data Access (YODA) Project - Health Data Consortium". Health Data Consortium. Retrieved 12 May 2015.
- ^ Krumholz, Harlan M.; Ross, Joseph S.; Gross, Cary P.; Emanuel, Ezekiel J.; Hodshon, Beth; Ritchie, Jessica D.; Low, Jeffrey B.; Lehman, Richard (2013). "A Historic Moment for Open Science: The Yale University Open Data Access Project and Medtronic". Annals of Internal Medicine. 158 (12): 910–911. doi:10.7326/0003-4819-158-12-201306180-00009. ISSN 0003-4819. PMC 5459387. PMID 23778908.
External links
edit- Official website
- Krumholz, Harlan M.; Waldstreicher, Joanne (4 August 2016). "The Yale Open Data Access (YODA) Project — A Mechanism for Data Sharing". New England Journal of Medicine. 375 (5): 403–405. doi:10.1056/NEJMp1607342. ISSN 0028-4793. PMID 27518657.