I am a scientific professional in the world of leukodystrophy research. Under 'Societies', a number of non-profit organizations are listed as resources. That is admirable and I respect all these organizations. The United Leukodystrophy Foundation is the oldest of these non-profit organizations and is a major source of information for affected individuals and their loved ones. It should be listed here as another non-profit of note. If it is not to be included since it lacks merit, then delete the entire section since all the other organizations have equal reason to be included as the United Leukodystrophy Foundation. Please visit their website to see that it is a professional non-profit organization [1]Jhacia (talk) 04:16, 28 October 2020 (UTC)