Clbratt

Welcome!

Hello, Clbratt, and welcome to Wikipedia! I hope you like the place and decide to stay. Here are some pages that you might find helpful:

• The five pillars of Wikipedia
• Tutorial
• How to edit a page
• How to write a great article
• Manual of Style

I hope you enjoy editing here and being a Wikipedian!

Thank you for your contributions to the Huntington's Disease article, alas it is being seriously revamped at the moment so we are being strict on references, it would be a great help though if you brought up any ommisions or opinions on it's talk page - I notice for example that the speed of progression / age at onset link isn't explicitly written until deep into the mechanics of the disease. First pointer - no need to add your signature to edits on the actual article, it's only really needed on the talk pages to make conversations easier to track.

If you need help, check out Wikipedia:Questions, ask me on my talk page, or ask your question on this page and then place {{helpme}} before the question. Again, welcome! L∴V 23:47, 23 March 2009 (UTC)

Huntington's disease

You have posted a message in the talk page of the article; but I am not really too sure what were your intentions with it: Is it a paragraph that you have written as a proposal for the article?, is it a paragraph you have copied verbatim from somewhere else as a reference to propose a section not yet covered in the article? It would be great if you could explain a bit more what you want or mean with any addition you make to a talk page. Editing at first may be a little complicated and you may be feeling a bit overwhelmed by all kind of rules and proccedings. If you have any questions feel free to ask. Bests.--Garrondo (talk) 08:26, 27 March 2009 (UTC)

Actually, for a class I have to edit a Wikipedia page. First, we had to do primary research then add to a Wikipedia article. This is all information I have compiled, not verbatim, and it is mostly a suggestion, I suppose, of something to add to the article. I feel like there should be a section about coping with the disease so I added that for people to add more to or edit and later add to the article. This whole Wikipedia thing is kind of confusing for me, I hope that clears things up a little bit! (Clbratt (talk) 00:28, 30 March 2009 (UTC))

Can I ask how old are you?, Where are you from? Why are you interested in Huntington's disease? (Just curiosity). More important: I would also like to know if your teacher has a wikipedia user page; since I would like to write to him. He probably should have explained better to you how wikipedia works. The thing is that wikipedia is not as easy to edit as some people think. In theory any addition should be verifiable and have sources that back it up. That specially applies to medicine articles; since it is very common for some people to add any kind of weird treatments that have no proven efficacy. As I have said this is the theory: it is common that in the first stages of an article emphasis on [[WP:MEDRS |reliable sources]] is more relaxed; however as an article grows and improves it is more likely that anything you add without quality refs backing it up would be eliminated. Right now we are at that point in the Huntington's disease article: We are trying that it becomes a good article and for it it has to fullfill a set of criteria; which are quite demanding. This is why we have asked you to propose any changes in the talk page. Regarding your specific proposal: it is not unreasonable for a section on coping with the disease (For example in the Alzheimer's disease article there is a similar sections); however I am still not sure. Some questions I have: Is coping with HD different to most neurodegenerative diseases? Is there anything specific to coping with this disease?; and the most important: are there any scientific studies on how to cope with HD?

I hope I have helped to clarify a bit how wikipedia works and now you understand why your editions were reverted. If you are still interested in helping tell me and we could try to figure out how can we do it. Bests regards. PS: It would be easier for me if you answered in my talk page instead of here; however if you are not sure on how to do it answer here (i´ll keep on my watchlist your talk page to see if there are any changes.)

--Garrondo (talk) 07:55, 30 March 2009 (UTC)

I am a freshman at Illinois State University and I'm interested in this disease because my mother died from it when i was 15, as did her mother, and her two brothers. The section I added can be backed up by the HDSA website and the Mayo Clinic website. Coping with this disease is much like coping with other degenerative disease, but, from my experience, much different. I also had a family member who had Alzheimer's and dealing with a death from that and from Huntington's were completely different because they attack the patients body in completely different ways. (Clbratt (talk) 16:46, 1 April 2009 (UTC)).

Websites are not usually considered medical reliable sources; even when they are from important sites such as those you say (nevertheless if you could point the exact url that could act as reference of your proposed text I would take a look). For any of that information to be added you would usually have to find a review article in pubmed talking about it. Have you ever used pubmed? Have you searched for Huntington and coping in pubmed? Other similar searches? If you find enough articles we might be able to create something like a "social and psychological impact" subsection in the society section. In a quick search I only found one interesting article (Huntington's disease. Part 3: family aspects of HD); but I do not have access to the full text in the hospital I work in. Bests.--Garrondo (talk) 17:11, 1 April 2009 (UTC)