Talk:CLOVES syndrome
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note edit
There are now 150 people worldwide with CLOVE syndrom. — Preceding unsigned comment added by 2601:248:8003:DF8A:E5A5:8943:74DA:957B (talk) 02:01, 8 September 2015 (UTC)
External links modified edit
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- Added archive http://web.archive.org/web/20150402145658/http://www.rarediseases.org/rare-disease-information/rare-diseases/byID/1266/viewAbstract to http://www.rarediseases.org/rare-disease-information/rare-diseases/byID/1266/viewAbstract
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Treatment edit
Today 14 June 2018 we find on french press a public announcement of a successful experimental treatment (with simply one pill per day). I think it's great news for the concerned persons if they not already informed (19 persons already saved, said the press article). The idea was to reuse a medic developed for another purpose by Novartis (Dr Guillaume Canaud, of "hôpital Necker Enfants malades (AP-HP)" Paris, end 2015). I don't know how to modify the main wiki article. I can provide one link in French : https://www.francetvinfo.fr/sante/maladie/premiere-mondiale-une-therapie-ciblee-fait-regresser-des-maladies-evolutives-incurables_2800137.html — Preceding unsigned comment added by 193.8.200.4 (talk) 13:30, 14 June 2018 (UTC)